Tuesday, September 10, 2013

Canceled biopsy

Ben was supposed to have his biopsy this Thursday, Sept 12. Unfortunately, it has been rescheduled. He has had a long month of illnesses. It started off with a simple cold that turned in to a sinus infection, which they also were riling out pneumonia. He was on breathing treatments and antibiotics and probiotics. As of last Thursday, Sept 5, he was pronounced good to go. And he looked really good. We were all set to attend one of his little heart buddy's birthday party and then school for the week and then his biopsy. Unfortunately, those plans changed.

On Sunday, very early morning, around 3 am Ben spiked a fever. It was not too bad at first. Around 100 degrees. But, we obviously could not go to his buddy's party. She is also a transplant patient and can not be around anyone who is sick. At the time, we had no idea what the fever was from either. Could have been teething, or he had recently started on an ointment that had fever listed as one of the rare side effects. That day he continued to be crabby and his fevers got higher and higher  until at one point they got as high as 101. We gave tylenol at that point and watched him. The next morning, we knew we were not taking him to school anyways, so we called the pediatrician. That morning around 4 am, his fever was 102.5. He was able to see him later that night and diagnosed him with an ear infection. How he got an ear infection after being on antibiotics, who knows? Maybe it was a viral one? But either way, he is now on Amoxicillan for 10 days. He was on cefdinir before for the sinus infection. But, after about the 11th day on it, his mouth started bleeding every time he took it. So, they didn't want that one again, and it probably didn't work for the ear infection, especially since the dr said it was a pretty bad one.

So, he was home again today. He had another fever this morning at 5 am, of 102.5. He has been pretty tired most of today and threw up once at 7. Though we think this was due to forgetting to give his meds with food. Won't make that mistake again! We are hoping to have him back at school tomorrow. He is looking better now. But, if he spikes a fever again at all, obviously we will keep him home. Also, the dr wants to have him get labs done if he has anymore fevers. So, he wouldn't be able to go to school if that needs to happen. We are waiting to find out when we can reschedule his biopsy for. The dr likes them to be off antibiotics for a certain amount of time before doing the biopsy. So, we have to wait to find out. Just one more bump in the road. Hopefully this is the last illness and he can stay healthy until his biopsy!
"I wear green for the organ donor who saved my life!"