Benjamin is doing VERY well these days! We are down to only 7 meds now and they are given 4 times a day. We are also down to cardiology visits every 2 months now. We do still have to go for labs about every 2 weeks. Since Benjamin is growing so quickly, they have to make sure his Prograf and Cellcept (2 anti rejection drugs) stay at a therapeutic level. Benjamin is also doing very well with his physical therapy. He is sitting up on his own now and is learning to side sit so he can safely get down on the floor from that position instead of just plopping over :) He also will stay on his hands and knees if I put him in that position. He can stay there for about 15 seconds. We are so pleased with his progress! Ben had a holter monitor done last week and we are hoping that the results will be great and we can get him off of propranolol. Just losing that med would mean we could go down to meds only twice a day!

I am still just as nervous about germs though. We don't go around people that we know are sick, we try to only go out to eat when it is not peak hours and try to be seated away from others, if possible. I also bring sanitizing wipes everywhere. I even sanitized the swing at the park when I wanted to put him in it and I always use a shopping cart cover. It can be exhausting sometimes, but it makes me feel better to think that I am doing whatever I can to keep him safe. One of those things includes getting his vaccinations next month. He will be starting with the DTaP. I am anxiously awaiting this one since there are outbreaks of whooping cough in our areas :( Whooping cough could be deadly for him. So, it really makes me feel better to know he will be slightly more protected against it.

Ben's next appointment will be in September and Abby will be going with him as well. She has a follow up for her PDA procedure. The new Children's looks amazing, but the parking is a bit more expensive and it's a little confusing to get to. But, other than that, it is a really great hospital!