Still feeling not so great.

I posted about a week ago about Ben having a cold. He is going in spurts now of feeling ok and feeling pretty crummy.

Kids watching Cat in the Hat together

I took him to the pediatrician on Thursday and she confirmed that it is still just a cold. But, if he gets any worse, any breathing problems, high fevers, high heart rates, etc, she wants him in the ER at either Edward or CDH. I am just really hoping it doesn't turn in to bronchiolitis again. He was pretty miserable all week and most of Saturday. He did play with his cousin and sister a couple of times. Today he seemed a bit better. Then just a couple of hours ago, he was nursing and sounding like he was drowning. He would stop every couple of seconds to breathe. So, he is working harder to nurse now. Well, I called the nurse and she said as long as he is not working hard to breathe and is staying hydrated, we don't have to come in. But, if he shows any signs of trouble breathing or has a fever, they want him in the ER. I keep wanting to just rush him straight to the ER just to make sure. But, of course there are major germs there too! So, that's not a great idea.

I also received a message from his kidney doctor today. I wanted to talk to him about the diarrhea Ben is experiencing that I believe is due to his Cytra-2. The kidney dr basically said that it can not be from the cytra-2 and that it is most likely an infection or his magnesium and I should call the cardiologist to get labs done. So, I called the cardiologist APN and she and I both agree that it is definitely not the magnesium. He is on the smallest dose he has ever been on and he was not even having diarrhea at twice this dose. We will be getting labs done at CDH on Thursday to make sure it's not some sort of infection. We will also be checking his PH levels as well as magnesium levels to see if he can completely go off of magnesium. If all comes back clear then the APN said we will discuss what to do about the cytra. Between his cold and the diarrhea, I am just afraid of him not getting in enough nutrients. The APN agrees with me about that.

Abby and Klara got slight colds too, but obviously Ben is fairing a little worse because of his immunosuppression. They are already pretty much over their colds. I just started getting some cold symptoms as well. I am hoping that Ben will get over this easily. I know it will probably take a bit longer than most kids, but I am hoping that it stays a cold and nothing worse.