Wednesday, May 8, 2013

Ups and downs the last few weeks

So, Ben has had some ups and downs over the last couple of weeks. He started off about 3 or 4 weeks ago with a cold. We knew what we were in for, as he never gets over those quickly. We prepared fo at least 2 weeks of him having a cold with the usual symptoms of nasal drainage and coughing and sneezing. I think it may have been made a bit worse because the pollen count was so high as well during this time. Well, he never got over it. It just kept going on and on. And then eventually he got so phlegmy that he was vomiting because of having phlegm in his throat all night long. Finally I took him in to his pediatrician who also diagnosed a GI infection as well as a cold. She wasn't sure if he had a GI infection, but gave him zofran anyways. It seemed to help. Meanwhile, he had his neverending GI issues that are due to his medicines he takes.

So, we started him on zofran. It seemed to help. He really only needed it in the morning, when he was most phelgmy from the cold. All seemed to be getting slightly better. He even seemed to be eating slightly better and resting a little better at night. Then last week we had a really exciting week. Not in a good way. Monday was when our pediatrician saw him and put him on Zofran. Then later that day, his sister was pushing him in the stroller and accidentally pushed him over a bump and he went down flat on his face, the stroller went on top of him, and she went on top of the stroller. There was blood everywhere. Bruises and cuts all over his face and arms and I could not tell if he had a concussion or injury to his teeth. So, off to the ER we went. All 3 kids and me. Joe met us there shortly after we arrived. We were there for maybe an hour, if that. The dr informed us that his biggest worry was if he had impacted a front tooth. The front of the skull is the hardest part, they worry more when they injure the side where it is softer. So that was good. No major injuries and he has healed up nicely from that.

Thursday, back to the dr because he was sounding yucky again and he had a fever as well the night before. The dr wanted to run some labs because his lungs sounded a bit junky, plus him having a fever was concerning. But it sounded junky higher up, not in his lungs, so she was not concerned about pneumonia. We did those labs at the hospital, so we went to the hospital after school. That was a mess. We decided to come back after gymnastics. Joe met us there later. Apparently it took 3 sticks and 2 different techs to get the blood from him.

IMG_9855The next day,  Friday, I had to take Klara for an ear recheck, so I asked about Ben's labs and they said everything was clear. He looked great on paper work. So, we headed home and ran some errands. I always pack Ben's meds in the morning because I have to give them at 2:30 and I pick the girls up (or on Mon and Fri it's just Abby) at 2:30. So, I had the meds in my bag to give him at 2:30. At 2:30, we were waiting in car line when I got out to give Ben his meds. Klara was asking me some stuff, so I wasn't really paying attention. I gave him his prograf like I always do, and then his cytra. After I gave him his cytra, I looked at it and thought, "that looked a little cloudy." Then thought" SHIIIITTTT! I think I just overdosed him on prograf!!" I immediately called Joe freaking out because I wasn't positive I overdosed him, but I was pretty sure. I mean there was no way to be positive. He said I should go home and check the other syringes. That made sense because I always draw up all 4 cytra syringes at a time. I got home really quickly. And yep, Craaaaapppp!! There was 1 syringe in there that looked like 9 ml of prograf and 2 that looked like 9 ml of cytra. So, I had just given our son 11 ml of prograf when he only gets 2.4ml. OMG is not enough! I was crying and freaking out and ready to head to the ER, again. For the second time that week. So, Joe got the job of calling transplant. I gathered up a bag and Ben's meds, fully prepared to have to stay and detox him. He called me back less than 5 minutes later and said "turn around, go home. You don't need to go to the ER. Just don't give him his 10:30 meds and he will be fine. He will have lots of diarrhea, and keep him extra hydrated this weekend, but he will be ok. Just don't do it again." So, that weekend, he had the WORST diapers I have seen. He was insanely crabby, and very awake from around 2-5 in the morning, wanting to play. But, other than that, he is ok. And he is back to his old self today. We even went to the Celebrate Life Transplant picnic on Saturday which is where the picture to the right was taken. He felt pretty good while we were there too.

So, he has had quite the exciting couple of weeks! We would now like some calm down time and for some illness free months ahead. I don't think that is too much to ask :) 

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