Made it 2 years

It's been 2 years with no admissions. Quite a record I guess. We were hoping for much longer. But, what can you do? Yesterday we took Ben to the pediatrician because he had really bad stomach pain and a fever. It wasn't as bad while we were there. But he also wouldn't pee in a cup. The dr asked us to go to Lurie to get an ultrasound. I asked if we were just going to get an ultrasound if we could do it at CDH. To which she said that was fine and called ahead for us. I mean, we would much rather be at CDH or Edward for any outpatient stuff. So, I headed over to CDH with Ben. On the way, he started screaming that his stomach hurt. Like screaming so much that I thought his appendix may have burst. Tylenol was not doing anything for the pain at all. So, they gave him morphine in the Er. That helped a little bit. But not a ton. They did some x-rays and labs. His labs looked pretty good, though he looked dehydrated and also his sugars were rather low. His x-rays though, those showed a ton of air all in his colon as well as throughout his stomach. The doctor came in and said that we needed to be admitted to Lurie. I asked her why we couldn't be admitted to CDH and she said that the doctors at Lurie were fine with it, but the doctors at CDH were not fine with taking a post heart transplant child. So, Joe came and switched places with me and he went in the ambulance with Ben and I went home with the girls.

Joe reported that last night Ben was rather cranky, but today he has been feeling better and they want to just keep him one more day for observation because of his lab work. They would like his labs to look a little better before he goes home. His glucose kept bouncing all over and his sodium bicarb levels were low as well. But, he is acting much more like himself. I got to see Ben for a little bit today due to a wonderful friend taking care of the girls for a few hours while I went down to Lurie. Ben was in great spirits and proceeded to tell me many stories about all the shows he watched and what he had eaten that day.

He did keep telling me he wanted to go home, which I wish I could have taken him home with me. But, hopefully tomorrow morning he will be busting out of there.