Ben continues to make improvements every day. His vent is at 16 bpm now, with a pressure of 18. This is the best I've seen yet. And he's tolerating it well. The APN was by and I asked about the chylous. She said his seems to be minor. The fluid was just slightly milky. So hopefully it will get better sooner. But he'll probably be on the special formula for a month. Which I guess is ok since we will be here at least a month. I just will have an over-abundance of breast milk in the freezer :) they finished one of his meds and might take out the central line tomorrow. The nurse started saving syringes for us to take home for meds. The kinds you get with liquid prescriptions. She said, most people find it easier to draw up all the meds and have them ready and give them as they're needed. Rather than draw it up every single time. It makes it easier to remember. Ben also had his first occupational therapy appt today. The ot was playing with rings with him. Sort of a tug of war. :) she will come 3 times a week. Physical therapy will come 2 times a week. They want to make sure his muscles are not tight and that he develops properly after being sedated for so long. I must admit, I'm a little scared about bringing him home. So many meds to remember. Plus, he will be immunosuppressed and has 2 preschool aged sisters. Germs everywhere! But at the same time, I can't wait to have him home. I miss cuddling with him and having a normal life.