Friday, January 20, 2012

Ben is getting better and better. I was able to nurse him 3 times today. For now, when he eats, we have to stop him after 30 minutes. There has been research showing that after 30 min, they start burning more calories than they take in. So far this hasn't been a problem. He gobbles down all his food. Usually in about 20 min. And his goal for each feed is 100 ml. That's a little over 3 oz. every 3 hours. But when I'm in his room I just nurse on demand. Joe said last night, Ben took 150 ml. So about 5 oz! Maybe he's going through a growth spurt, because he's eaten about every 2.5 hours today and has been extra sleepy. Of course right now it's been 4 hours since his last feed. We're going to have to wake him up. The hope for him is, get his meds in a good range this week so as to get rid of the arrhythmia. Then possibly be at Kohl's House by Thursday. Joe and I have to do all the meds training and vitals. Joe and my sister are taking a CPR course too. I am CPR certified so I don't need to take it. But I might join in just to have a refresher. Then, we will have a boot camp type day where we are still at the hospital, but we are in charge of all his vitals and meds, baths, and feedings. That way we get used to doing everything, but still have a nurse here just in case. We saw the list of meds last night. There's 12 meds he goes home on. We hopefully lose 1 in about month. Then another one at 3-6 months and 2 more between 6-9 months. It's pretty overwhelming to look at. But, this will just become our new normal.

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