Saturday, January 21, 2012

Well, it happened again. Ben pulled out his ng tube for the second time. But, this time they left it out. They figured, he's nursing and taking bottles and does fine with his meds, so there's no reason for it anymore. So, now we're down to just his central line, the EKG monitor and pulse ox (which doesn't work half the time because he's so wiggly) and the pacer wires which are not connected to the pacer anymore. The nurse and his cardiologist said its looking like we will be at Kohl's House by Thursday. So, the nurse stepped up the trainings today. I did his vitals and gave him all of his morning meds and some of the afternoon ones. Joe did some of the afternoon ones and all of the evening ones. Joe also got trained on how to check his respiration and heartbeat using the stethoscope. We will both be working on taking his blood pressure the next few days. That's a more difficult one. We are also doing CPR training tomorrow. As is my sister since she helps out with the kids. We have another training on Monday to go over what to look for in cases of rejection or infection. They said that really the only thing holding us up now is us doing the training and the 24 hour boot camp. We can't do that with the girls here. That would be a disaster, cooping them up in his room for 24 hours. So we will do that Wednesday probably. His arrhythmia's are even getting less frequent and the cardiologist said that his echo looked better since they've had him on the high dose steroids. The lining isn't as thick anymore. I'm so excited to have our family back together soon!

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