Monday, January 16, 2012

Great news today! Ben will be going to the 5th floor tomorrow, as long as they have room up there. He needs a private room since he is post transplant and can't be with another kid who is actually sick. So they have to make sure there is space. He looks so good without his nasal cannula now. Practically the same as before except for that pesky ng tube. They also disconnected his pacer (but left the wires in) to see how he would do. He did amazingly well. I don't think his hr went below 100 at all today. His Iv is still in, but that will stay in until he is about to be discharged. The only thing going in his Iv is lipids now. And they're probably going to stop those soon. He started getting bolus feeds today. Meaning, they have him on a normal feeding schedule of every 2 hours instead of continuous feeds. It was so amazing to walk in there and see all the monitors gone except for 3. One for lipids, one for feeds and one in case they need to give something Iv. At one point I counted 14 different machines that would infuse him with 14 different things. And now he's down to 3. And none are continuous except the lipids. It's so amazing! Also, once he is on the 5th floor, as long as he doesn't need to wear the mask, we can bring him to the play area. So, we can all be together in there, instead of trading off who will be with him and who will go with the girls. I think everyone will be so much happier once we can be together as a family again

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