Well we've had a bit of another setback. Ben didn't go to the 5th floor today. He was having some irregular heart rhythms. So they did an echo and EKG. It showed some thickening in the left ventricle. This could mean many things. But, the number one thing they are treating for is acute rejection. Now, this doesn't mean he needs a new heart. The thickening was very minor and the irregular rhythms are gone now. But, they're giving steroids to treat it as if it is rejection. I do not remember them telling us this (I was a bit emotional at the time) but it is apparently common to have 2-3 rejection episodes in the first year. They treat with steroids and upping the anti-rejection drugs. His Prograf level was at 9 and they like it at 12. So they'll increase one of his anti rejection meds until it gets where it's supposed to be. They don't want it too high though. So, it's a delicate balance. The APN said she is not worried at all and she thinks we will be on 5 tomorrow. Let's hope so!

Otherwise, he's doing great! The speech therapist came by while I was with the girls. I saw her right before she left. She said he took 2 bottles. 1/2 ounce each! She also switched his pacifier so it was more like the bottle nipple. They put the rest of the feed down his tube. Then, the next feed they did breast milk! They're doing a challenge to make sure his Chylous is cleared up. If it is, I can try nursing again. All in all, not a horrible day. But I wish it was better. One funny thing. He pulled out his ng tube a few minutes ago. I had turned around to put his diaper on the scale, and just that quick, he had it out. He was laughing hysterically. He loved it. He was so proud of himself. Of course, he was super pissed when they put it back in. :)