Wednesday, January 25, 2012

Chest X-RayI haven't updated in a few days because, well, Ben is doing awesome and there's not much to tell. Until today. He is doing really well and has not had any of the arrhythmia's. So, I did my 24 hour care, where I was in charge of everything. His vitals, meds and feedings. Of course the nurses were still there watching everything. But, I was the one doing it all. Joe is doing that tonight. This is in preparation for us to go to Kohl's House tomorrow! :) as long as he still looks good and doesn't lose any more weight (he lost 2 oz overnight after consistently gaining. But they're ok with that as long as he doesn't continue to lose). I was exhausted today! They had him on an every 3 hour feeding schedule, which didn't match up with his vitals or meds. So I was waking him every 1-2 hours for something. So neither of us got any sleep. I talked to cardiology today and they said its fine for him to go back to a normal baby schedule of feeding on demand and sleeping when he wants to. Also, the only feed for 30 min max, restriction is off. He can eat as long as he wants to now. And boy did he today. So, tomorrow, I will again be doing all of his care at the hospital, and then we will hopefully be discharged after Joe gets here. Yay! I can't wait to be able to do everything as a family again. To not have to leave my baby in the room to go get food. To not have to divide my time between Ben and the girls. To be able to be with Joe and Ben at night. It will be so much nicer. And then, hopefully by the end of the month we can actually go home! That will be so awesome! I can't wait to be in my own bed and to to have to say goodbye to the girls every Tuesday as they stay with friends for their school days. I can finally resume bringing them to school. I can't wait for all of that!

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