I really hate all this uncertainty. Today we had found out Ben has a bacterial infection. Which like I said, at least they give antibiotics for it. His hr was hanging out in the 170s. Well I got here about an hour and a half ago. Joe had said his hr was in the 180s. When I got here it was 190s. Then he had so much mucus his O2 was down to 92 at one point. It's back up to 97 after a lot of suctioning out. But his hr is still 190. I just wish he'd get better and get his new heart soon! I was sitting there crying every time the O2 would dip or his hr would raise. They changed one of his lines too. From the right hand to the left. Apparently it's not reading well. So the dr went to get some stuff to adjust it. They said the hr could raise with his infection. But it's really high :( his temp is 100 again. Up from 99 earlier. This all just sucks! I want my baby home