So Ben is about the same today. Hr in the 180-190s. The nurse practitioner lowered the epinephrine a little in hopes of lowering his hr. it didn't do much though. But she said she's not that worried. The rest of his numbers all looked great! He's still paralyzed. They may take him off the paralytic tomorrow. We'll see. The fever is way down now. No higher than 100 today. Mostly 99.

I have to talk about Abby and Klara though. They are taking all this really well. But, I have to share today's antics. :) we were at Kohl's house waiting to go to the hospital. They told me to lay down and they would fix me. I was more than glad to oblige. I was tired. :) so Abby says, "ok, we're going to put tubes in you. Ok. Now you need a tube In your mouth to make you breathe." then Klara says, "now I'm putting is sticker on your head to watch your numbers. And now I'm putting jelly on your tummy and we will see pictures of your heart. Oh, your heart is broken! Now we have to put stickers on your tummy and watch the lines. Ok, time for your shots. You need medicine to fix your heart." then Abby adjusted my pillow and tried to move me. Clearly they seem to have some sort of understanding if what is going on with their brother. :) I wish they didn't need to know all of this. But it is good they seem ok with everything.

Tomorrow is going to start to get a bit harder. Joe goes back to work and that means more juggling of kids so that I can be with Ben as well as the girls. That may be a bit of a challenge. My mom and grandma will be helping out out, so that's good.

I saw another woman in one of the play areas at the hospital. Her daughter is there for something else. But she was telling me about her son, who died of heart failure. She said, he had many other things wrong with him too. So, he wasn't eligible for a transplant. Then she said something that stuck with me, "I know it is so hard to wait for your baby's heart to come. It must be so hard not to know. But at least he gets to be on the transplant list and gets a chance to get a heart." this is so true! I'm still wishing it will come soon. But, at least my baby is getting a chance by being on the list. She also said she would pray that he gets his heart soon. I must have millions of people praying for Ben's heart. I love that he is already so loved!