Friday, December 30, 2011
I just wanted to clarify something. Joe told me that some people thought that Abby and Klara's PDA was the same thing Ben has. Abby and Klara's problem has nothing to do with what Ben has. Their problem is something that is easily corrected and even if left uncorrected will not affect them for a long time. This is what it is: http://www.mayoclinic.org/patent-ductus-arteriosus/ It's very rarely seen in full term babies, but it's not something that is fatal right now. The doctors are not concerned at all, which is why they said we can wait to get Abby's fixed until Ben is better. If they were concerned, they'd have us go in to get it fixed right away. Ben's diagnosis is idiopathic dilated cardiomyopathy. Ben had all the symptoms in this article. But I never thought to check his pulses and the breathing problems didn't start until we were on the way to the dr. Basically, it's where the heart can not pump blood efficiently enough and becomes enlarged. This can cause decreased heart function and even heart failure which also affects other organs. Ben's is bad enough that he went in to cardiogenic shock when we were first admitted. His heart was not perfusing enough blood to the rest of his organs. So he was cold and had weak pulses and high hr and low Bp. This is obviously nothing like what Abby and Klara are like. They are running around here playing every day. The dr just wants Abby to get hers fixed so she doesn't have problems in the future which, if left uncorrected, can happen in her 40's or later. Obviously Ben's problem is of a more serious nature and needs correcting right now. There's no danger of Abby needing a new heart because of her PDA. I hope that makes sense. I don't want anyone thinking we will need 2 heart transplants. I think it sucks that Abby will need to undergo the cardiac catheterization to fix this. But, I wish that's all Ben had to undergo to fix him. His will be a lot more invasive fix, unless we get a miraculous recovery. Which I would also love! But if not, I would also just love him to get his new heart!
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