Monday, December 19, 2011
So Tuesday, December 13, was pretty chaotic and hectic as well. We had a few temp spikes, his Bp dropped. His hr was in the 200s when it should be between 130-150. It was so nerve wracking. I told Joe I wasn't sleeping until he came home. This was me still thinking this would be a quick fix :(. I did end up crashing for a couple hours. I could barely leave his side for fear of something happening. We had some awesome friends helping with the girls. One friend picked them up from school and delivered them to another friend. They spent the night there a couple of times. We are so thankful for that. We kept hoping he would just heal on his own. But every day from Tuesday-Thursday his echo came back not good. The way they explained it is the top chamber is working but the bottom chamber ( which pushes blood out) was hardly moving. They kept mentioning transplant. But they were giving him to Friday to see if he'd recover. Well Friday came. We met with the drs. His echo was slightly worse. :'( he was definitely going on the transplant list. My heart sank. I had hoped that his improving vitals meant he was improving. Well, he is getting stronger but his heart is getting weaker. The weekend brought even more strength in my little fighter. He has tried to take out his ng tube and once disconnected the vent. He should be happier by tomorrow. They think he may be strong enough to be extubated! We ate so excited about this! He still needs his new heart, but he's getting stronger. Which, we want him as strong as possible for the surgery. His sisters have so many questions about all this. We have a specialist that will explain everything to them on wed before they visit. We just talked to the transplant pharmacist and he will go home on between 8-12 meds. We'll want to talk to the girls about that too. That's as much as I can remember right now. I will add more later.
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