We've had another setback. Ben's hr was elevated much of the night. As soon as the sedation would wear off, he'd get agitated again and his hr would go up. They bumped his vent settings back up to 20. He was not tolerating the lower settings very well. It doesn't mean he won't tolerate it once he gets his new heart. But with his heart so sick, he just can't tolerate the stress load right now. It hurts so much to know we're going backwards. He was doing pretty well for a while there. Now they're trying to keep him sedated for much of the time so he doesn't get stressed out. I hate this! He's supposed to go for an MRI of his brain tonight. They won't do it though if he stays in this higher hr range. It was just to basically get a baseline for after transplant. But it's not worth the risk if his hr is elevated. We REALLY need a new heart. Like right now. I'm getting so scared. They're talking to me again about the possibility of the heart lung machine. This is too scary! I just want my baby home. One good piece of news, the girls school has given them a full scholarship for the duration of Ben's stay. So that's one less bill to worry about. Please keep praying that Ben gets his new heart very soon!