So today has been pretty good. Ben's hr has been 160-170. The nurse said that until they are 6 mths old, babies hr can be up to 180 and it's perfectly fine. But they like to see it 130-150. That's more of a norm. Especially when sleeping. His was 160-170 even when sleeping today. So, not horrible but not where they want it. They decreased his vent settings a bit. Down to 19. And they decreased his sedation. So hes more awake now. Which is good, but he also gets frustrated he can't spit the vent out. And then his hr goes up. They also started small feeds again. 3 ml an hour. He seems to be tolerating it so far. Of course that's like a tsp an hour. But they don't want to stress him out too much. In other news, Abby and Klara had EKG and echos today. They want to make sure whatever's going on with him isn't hereditary. God, I don't think I could deal if they had this wrong with them too. Good thing is, they've shown NO symptoms at all ever. So they should be ok. That's all for now. We're hoping for continued good days and a new heart!