Not a great day for my little guy :( I walked in today to the news that his heart function is worsening. I just started crying. That's not what I wanted to hear. :( they were talking possibly doing ecmo ( the heart lungs machine). But, after I talked to the dr he said that's not where we are yet. Yes, his heart function is worse based on his bnp ( which I forget what that stands for) but the rest if his numbers looked good. Since those looked good, they're still watching his bnp. But they are not overly concerned yet. They did stop his feeds though and put him on iv fluids instead. His body was not tolerating feeds due to the worsening bnp. They also upped his sedation to a continuous drip instead if every 4 hours. They also upped the vent again to 24. All that being said, everyone who sees him says how good he looks. And he does look good. Like a regular baby. Just with tubes coming from everywhere. :( now, the dr did say, his bnp numbers *could* drop again. It could get better. It has gone up and down since he's been here. It just hasn't been this high since he was admitted. :( but, of his other numbers like his Bp, his hr, or his blood gasses start getting worse, we will need to weigh the risks and benefits of ecmo. Which is never a good sign. They want him as strong as possible for the transplant. And just because he goes on ecmo doesn't mean he wouldn't come off of it. Once he gets his heart, the nurse says she's seen babies go off of it within a week. Apparently, it's good this happened as an infant. Babies are much quicker healers. And they can accept an organ from any abo blood group because their immune system is so immature. So, that's a couple good things he has going. I just continue to pray that he gets a heart soon. He desperately needs it. Thank you for all the continued prayers.