So a little while ago, Ben's hr was 209. It went up to 217 at one point. That's when there were 3 nurses, the picu attending (head of picu actually) a cardiologist and a nurse practitioner. That was so scary seeing so many people needed for my baby. They upped his vent beats per minute to 28 then 30 now he's at 34. They upped another setting to 45. But I don't know what that one was for. When we were admitted, his vent Bpm was 40. So we're not far from that. They also paralyzed him and upped his sedation and added another sedation med and upped his morphine. They're also adding back the epinephrine. His hr was down to 192 when I left to let Joe go in there. They also stopped his feeds again. I told the APN, "when he's better from this (because he HAS to get better) can you do 1 thing at a time instead of reducing the vent, the sedation and doing feeds all at once?" it just seems like his little body can't handle all those things at once. She agreed and that's what we will do next time. I just hope his heart comes soon. It seems he desperately needs it now. They said were not at a point for ECMO yet. So that's good. But we may eventually want to discuss the Berlin Heart. I just hate all these setbacks. I want him better quickly!