So the drs went down on the pressure setting on Ben's vent today. He was at 19. Now at 16. His beats per minute is still at 20. They also upped his feeds to 5 ml an hour. But he has 4 hours worth of feeds in his belly right now. :( the nurse is giving him until noon to move some of it out and then she will give him a suppository to try to help. His hr is in the 180's again :( probably because his belly isn't moving things along. I feel like they keep trying all these thing at once and then it fails because it's too much at one time. I feel like they should try one thing at a time, and the nurse (M., our favorite) agrees with me. At least they didn't fortify the breastmilk this time. I feel like that may have added to the problems last time. Everything else looks good though. So just more waiting. I went on the UNOS website last night. For a child under 1, the wait time for a heart is 70-90 days. I don't want to wait that long! I mean, it can be shorter. But that's the average. I don't want to wait that long. I want him better now!